This is a project to create awareness amongst South Asians about the need for participation in the National Bone Marrow Donor Registry.
A few months back, our community member Vijay L. Waghray was diagnosed with AML (Acute Myeloid Leukemia). Few days ago, she finished her second round of chemotherapy at the Ireland Cancer Center @ University Hospitals in Cleveland, Ohio. Once all the rounds of chemo are done and her counts go up the next major step in her treatment is a bone marrow transplant which will happen in the next few months. We do not have an exact date yet. The process to find a match has already started. Immediate family members (her siblings) have been tested as potential bone marrow donors, but unfortunately there were no matches. The next step is to find a match within the National Bone Marrow Donor Registry. The hospital is currently in the process of finding a match through the National Registry. But this process can take anywhere from a few weeks to a few months and there is no guarantee they will find a match. Our ethnicity makes it even more complicated to find a match. There is a better chance to find a match within our own community, our race, our region, and within South Asians. With that in mind we are giving you some information regarding the bone marrow registry process and requesting your support (by becoming a donor and spreading the word) in helping a member of our community.
Do you know what percentage of South Asians are currently Registered in the National Donor Registry?? A whopping 1%
That means a South Asian patient has a 1 in 20,000 chance of finding a potential match. For Caucasians it is 1 in 15 !! Also, for South Asians when a match is found, almost 50% do not go through with the donation !!
Why is our South Asian Community under-represented and how can we fix it? As Indians we pride ourselves on the sense of community, however everyday there are hundreds of South Asian patients who cannot find donors/matches.
We CHALLENGE our community to get every eligible adult between the ages of 18-60 REGISTERED INTO THE BONE MARROW DONOR REGISTRY within the next few months.
But it doesn't stop there, make an effort to get at least 3 more people registered, and ask them to PAY IT FORWARD!
Remember our community members outside of the US, it is important that they are informed and registered!!!!!
What does it mean to register into the Bone Marrow Donor Registry? Registering only takes 10 minutes and requires no blood, just a simple cotton swab of the mouth. Before registering, it's good to know what the bone marrow transplant process is like. Find out more about it : http://www.marrow.org/DONOR/When_You_re_Asked_to_Donate_fo/Steps_of_Donation/index.html
Once registered, you will be entered into the National Marrow Donor Registry. If you match a patient in need, the registry will contact you at that time to discuss the donation process.
Once you are informed and ready, there are several easy ways to register: How do you Register:
- IN PERSON – ATTEND A DRIVE. There are MANY drives being held over the next two weeks all over the US through the CureSonia Campaign
Please see the link below to find a drive in your city:
http://www.facebook.com/CureSonia?v=app_4949752878#!/CureSonia?v=app_2344061033 or Go to curesonia.org -- > this will take you to a Facebook Page --> Click on the Events Tab (You do not need to be logged into Facebook )
If you cannot find a Cure Sonia drive near you, visit the National Marrow Donor Program (NMDP) website to find one near you
Drives through SAMAR organization: http://www.samarinfo.org/drivecalendar.asp
- HOME MAIL KIT
If you are a minority in the U.S., you can order a FREE at home test kit.
You can order a home registration kit through the National Bone Marrow Program's website http://www.marrow.org/JOIN/Join_Now_Sponsored/join_now_sponsored.html Use the Promo Code "AADP", which gives free registration for minorities and a discounted $25 registration fee for Caucasians.
- HOST A DRIVE - Volunteer to host a drive in your city, at your temple, organization functions, or any other event
where there is a large South Asian community present.
- If you would like to host a drive, please contact Rathi Sahgal @ email@example.com
IF YOU ARE ALREADY REGISTERED
If you have already registered, please make sure your contact information is current.
You can confirm your records via this (www.marrow.com)
- If you are Pregnant and want to help, consider donating Umbilical Cord Blood. Talk to your doctor and click here for more info!
Any questions or would like to host a drive in your city, again please contact Rathi @ firstname.lastname@example.org
Together as a community, we need to work together to increase the number of registrants in order to give others a chance at life.
BECOME A DONOR. SAVE A LIFE. BE THE CHANGE YOU WANT TO SEE IN THE WORLD !
Bone Marrow Donor References:
Sincerely, Waghray and Sahgal Family