Sam Berns

https://en.wikipedia.org/wiki/Sam_Berns

Sampson Gordon Berns (October 23, 1996 – January 10, 2014) was an American activist with progeria, an extremely rare and fatal disease that causes the body to age rapidly. Berns helped raise awareness about the disease and he was the subject of the HBO documentary Life According to Sam, which was first screened in January 2013.